We recently talked about four autoimmune diseases: lupus, rheumatoid arthritis, Sjogren syndrome and scleroderma. I thought I’d share a couple quick posts I wrote about CREST syndrome and lupus in case you might find them helpful.
You might also want to check out a New York Times series called “Patient Voices” in which several patients with a particular disease talk about how that disease has affected their lives. Here is a Patient Voice article on scleroderma. It’s a bunch of short stories (a couple minutes each), narrated by the patients themselves, accompanied by a series of photos of the patient. I highly recommend you listen to some of these. I identified with “The Mom with Frozen Fingers;” you may wish to start with “Losing his color” which is narrated by a 26 year old man. I think you’ll probably find yourself listening to more than one.