Tomorrow we’ll talk about the systemic sclerosis, or scleroderma.
The New York Times has a nice recurring feature called “Patient Voices” in which several patients with a particular disease talk about how that disease has affected their lives. Here is a Patient Voice article on scleroderma. It’s a bunch of short stories (a couple minutes each), narrated by the patients themselves, accompanied by a series of photos of the patient. I highly recommend you listen to some of these. I identified with “The Mom with Frozen Fingers;” you may wish to start with “Losing his color” which is narrated by a 26 year old man. I think you’ll probably find yourself listening to more than one.
There are others Patient Voices segments on lupus and Sjogren syndrome too.
